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October 28, 2010

Comments

Laura

Hello. This is my first visit to your blog and I am intrigued. (which is cool) I don't think I quite understand what you're saying here. It seems that what you're saying is that the Communication Shutdown is bad, but the Austics Speaking Day is just as bad. Is that right? If so, is that because the Speaking Day isn't really being organized by a couple of women in their living rooms? I'm a bit naive about all of this.

Ed

Hello Laura, Welcome to The Standard Review blog. I apologize for not responding to your comment earlier.

Generally, autism advocacy of any kind is not expected to be held to the same level of standard ethics as that of another advocacy that works to fight discrimination and abuse.

This is in keeping with how autistics have generally been treated. Unfortunately, there are few choices for those looking to promote human rights for this population from within an organized group. Asking that people choose between the groups established based on each group having different philosophies and approaches is misleading.

I've found the leadership of the Autistics Speaking Day to be misrepresenting their agenda and claiming to be inclusive when they aren't interested in that at all. In fact, the intimidation I received from the leadership of this event, and their representatives was very similar to the ways of ASAN (Autistic Self Advocacy Network).

In the past two years, some bloggers such as me who were attempting to promote a better understanding of autism and discourage the harmful effects of sensational mainstream autism advocacy by referring to the term neurodiversity were intimidated by those with political aspirations. Neurodiversity (capitol letter N) is now a political movement and the methods the leadership exercise to promote their agenda is the same as the other substandard autism advocacy groups. This event (The Autistics Speaking Day) is meant to be supportive of the Neurodiversity movement, and I see events leadership following the same bad policies.

Ironically (contrary to what the name would suggest) the Nerodiversity Movement is encouraging exclusion and discrimination against minorities as well as discouraging individualism and creative thinking.

Laura

So sorry, I'm just now checking in. Thanks for your response. I've been curious about what the "Neurodiversity" movement really is. I'm not normally someone slow to catch on, but I find myself struggling to understand. Can you explain how "the Nerodiversity Movement is encouraging exclusion and discrimination against minorities as well as discouraging individualism and creative thinking?"

Ed

Now I'm not sure the point of your inquiry. I feel I've been very thorough in explaining the points I'm attempting to make for this blog post. My views about the Neurodiversity Movement aren't any better or worse, more accurate or less, than anyone else. I'm just writing about some ideas I have. What are your ideas about that subject?

Laura

Yes, I'm sure you have been thorough in explaining it. Sorry to be slow. It appears I've made you feel defensive. I'm sorry about that. I didn't intend to imply that I found your views better/worse, more/less accurate. In truth, I would not be able to make such a determination, because while I understand that you have a negative opinion of those in the capitol "N" Neurodiversity movement, I have no understanding of why you have that opinion. As such, it would be foolish of me to make any judgment on your position.

My view is that I'm uncomfortable with people calling Autism a disease that must be eradicated. I don't agree with the idea that helping Auties/Aspies means making them "non-Autistic". I do believe in traditional/ scientifically sound interventions to help us overcome the sometimes debilitating aspects of being on the Spectrum. The rest of my position I am still formulating. Which, was the nature of my inquiry. Sorry to have bothered you.

Theo

I fell this division in the advocacy community itself it more damaging then anything our opponents could ever do to us. I see it when the parent advocates argue with the self advocates. I see it when self advocates argue amongst themselves. Even when it seems to me that our goals are all the same, we refuse to work together on the things we hold in common because we become overly angered by where we are different.

I hope I don't get flamed for this. But one of the things I have noticed is this sense of over compensating for being overlooked by demanding that we get things BECAUSE we have a disability. For example, when we demand that a company HAS to hire a certain number with disabilities. This goes to far in the other direction!!!

We should want an EQUAL playing field!! I should not be discounted because of my disability. I should also not be preferred to and catered to because of it! I want someone to hire me over others because my qualifications and my manner convinced them that I was the best for the job. If someone without a disability is better, they should get the job! An equal playing field means that my getting or not getting or attaining something has nothing to do with my disability. And a person without a disability attaining or getting something has nothing to do with them NOT having a disability.

I don't want to be discriminated against because of my label, and I don't want preferential treatment either. But that seems like to me what many are demanding. Demanding that buisnesses hire a certain number of those with disabilities, and things of that nature does not help our cause! It embitters those around us and creates resentment, and even more discrimination!

I hope that makes sense.

Ed

It makes sense as individual unrelated ideas you have. It's confusing as to how it relates to this post or anything I've said (if it is meant to be related). Did you mean this in relation to this post? I won't allow flaming on this blog site. Did you think I would flame? Have you ever witnessed my doing that? This does make your comment confusing.

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